Tag: world cerebral palsy day

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Cerebral-palsy Orthopedics Pediatric Orthopedics Sports Injury

Adaptive Sports in Cerebral Palsy


On #WorldCPDay this year, amid the pandemic, we’ve managed to launch a new rehabilitation facility in association with Karunya MVRC, Palakkad, Kerala, India ( @Karunyamvrc on Twitter )

Kerala State loves Sports, and specially loves Football. We married care for children with Cerebral Palsy and Sports, to setup a one of a kind Adaptive Sports Environment where children would be trained with Physiotherapist’s support by well known Sports Coaches.

Paediatric Orthopaedic Surgeon’s service is also available to assess these children and triage then into various categories from where they can be rehabilitated.

Our Cerebral Palsy Adaptive Sports Team

Ms. Valarmathi- Physiotherapist


Mrs. Valarmathi- Senior Special Educator

Mr. Ravindran – Retd SI and Kerala, Police state and national team Football coach


Ms. Dhanya Ravi- Change Maker, mentor, PwD, National Award winner in the Role Model Category under Empowerment of People with Disability


Mr. Anudarsan – Director , Karunya Medical and Vocational Rehabilitation Center


Dr. Easwar TR Paediatric Orthopedic Surgeon

Karunya MVRC Contact Details


Website – www.kmvrc.in

Address: Karunya, Chenkol, Karingarapully, Palakkad 678551
Phone – 9061000101 /8590667698

What is Adaptive Sports ?

Adaptive Sports is a special type of Sports training given to children with special needs by adapting the requirements of sports to the specific difficulty the child faces.

This would often involve some change in rules, some Assistive device support, fall prevention and a completely tailored coaching system to enable the child to play effectively.

Why Adaptive Sports ?

Well known rehabilitation method for Cerebral Palsy is Physiotherapy. Often times children find repeated therapy sessions boring, painful at times and many fall out of care. We’ve seen this happen over the years.

Also, there are several limitations to traditional physiotherapy approach when given as a single rehabilitation modality.

Sports training allows much the same benefits of improved strength, coordination and improvement in function that we get out of Physiotherapy but also improves the quality of Physiotherapy session as the child is a willing participant because of the interest in sports.

What are the special challenges in setting up Adaptive Sports in India ?

Coaching for Adaptive Sports is a patient art and the skill is much in dearth. The Sports coach has to tailor his or her expectation to the unique medical issues of the child and training method is customised accordingly.

Often these children have profound muscle weakness, spasticity ( unusual tightness of the muscles ), contracture, ataxia ( issues with body balance ) and inability to selectively more a body part. These result in delayed improvement a ability to perform in Sports activity. These children need care and support of their team to get ahead.

The coach has to be understanding of all these aspects and train the child.

What have we launched in Palakkad ?

Details about our effort to train children in Adaptive Sports here :

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Cerebral-palsy Orthopedics Pediatric Orthopedics

World Cerebral Palsy Day 2019 #GoGreen4CP


It’s October 3rd.

3 days to go

October 6th we will join the world at ICCONS, Shoranur , Kerala in celebrating #WorldCerebralPalsy day.

What we are lining up this month ..

We are starting the programme by joining the #GoGree4CP movement to dedicate ourselves to the care of #CerebralPalsy affect children.

We will be lighting up the entire building in green for the entire month and put prominent placards, posters and banners in local language of Malayalam and English to spread awareness about CerebralPalsy among general public.

Lined up after that is our free medical camps in both Paediatric Oethopaedics and Paediatric Neurology and Developmental Paediatrics along with cultural activities, parents education seminars, assistive technology programmes, research on Cerebral Palsy, Counselling for parents and other events.

We have dotted the events across this October to keep the awareness and dedication alive.

Attaching below is a poster and a banner of our medical camp and GoGreen4CP initiative.

Categories
Cerebral-palsy Deformity Correction and Limb lengthening Orthopedics Pediatric Orthopedics

#WorldCerebralPalsyDay event !! – wonderful experience at #Palakkad, #Kerala

Dr. Easwar T R addressing the parents on care giving in Cerebral Palsy and treatment options

It was a wonderful experience to be part of the team that organised #WorldCerebralPalsyDay event to bring parents, children, caregivers, NGOs, Doctors, Therapists, Counsellors together for a day and have fun and enrich themselves.

The event was organised by Lifecare #Physiotherapy Centre, #Palakkad, Kerala along with #Sevabharathi, #Kerala at Thrupthi Hall in the centre of town.

The choice of centre was superb as it was right in centre of town allowing easy transit for children coming in from rural areas and those with limited mobility.

We assembled at the centre around 10 am and crowd had already trickled in at that time. In another hour about 40 children, parents, caregivers and health care professionals had assembled. The inauguration was a minimal affair with Dr. Sreeram Shankar starting the welcome address with respects paid to the almighty and the parents who had taken time to get here. This was followed by a medical camp by me, a painting competition and a singing competition for the children. There was a talk after that by Dr. Deepa, Psychaitrist, District Hospital, Palakkad which was followed by my parental awareness on treating #CerebralPalsy children.

Cerebral Palsy inaugural address by Mr. Kalyanaraman, Palakkad, Sevabharathi
Cerebral Palsy Event inaugural address by Mr. Kalyanaraman, Palakkad, Sevabharathi

It was a red-alert day in many places for #Kerala because of fear of inclement weather. However, rain stayed away largely apart from slight drizzle. That was a relief.

Parental counselling on treatment options in cerebral palsy
Painting Competition for Children
Dr. Easwar T R addressing the parents on care giving in Cerebral Palsy and treatment options
Adult Cerebral Palsy is becoming a major issue. I was surprised that patients had pertinent questions on that topic.
Dr. Sreeram Shankar Inaugural address

Dr. Sreeram Shankar Inaugural address
Adult Cerebral Palsy is becoming a major issue. I was surprised that patients had pertinent questions on that topic.
Dr. Easwar T R addressing the parents on care giving in Cerebral Palsy and treatment options
Painting Competition for Children
Parental counselling on treatment options in cerebral palsy

About 40 children took part in the celebrations, competitions, talks and counselling sessions. It was well appreciated by all, many who are experiencing this for the first time.

Positive vibes which would rub off into the child’s care was the key. Parents took strength from one another and participated in the awareness session. Many misconceptions about Cerebral Palsy, Seizure Disorder, Autism, Global Developmental Delay were cleared.

We are planning sessions throughout this month and hopefully improve the quality and participation of these events in the next iteration.

 

Categories
Cerebral-palsy Deformity Correction and Limb lengthening Orthopedics Pediatric Orthopedics

World #CerebralPalsy Day – October 6, 2018

World Cerebral Palsy Day - at Palakkad and Shoranur, 2018
World Cerebral Palsy Day - at Palakkad and Shoranur, 2018

#WorldCerebralPalsyDay is afoot. Like last year, I am planning to conduct month long events across Palakkad and Shoranur to raise parental awareness on treatment of #CerebralPalsy.

Most of the parents who come for care of their children come late, unfortunately with joint contractures, hip subluxations, alteration in knee mechanics and foot deformities. Aside from these the problems these children have with upper limbs, hands and doing activities.

Many of these children have uncontrolled seizures, terrible difficulties communicating, speaking out their issues apart from ambulation.  Ambulation may in fact be least of their issues. This sad fact goes to show how important early referral is and how important it is to enroll the child under a care of a Pediatric Neurologist, Pediatric Physiotherapist who can then co-ordinate care with their colleagues in Pediatric Orthopedics, Pediatric Medicine, Occupational Therapy, Speech Pathology, Audiology etc ..

Cerebral Palsy care is a great team effort. No part of the team is greater than other, but the role of the General Practitioner / Pediatric Medicine Doctor, Pediatric Physiotherapist is central, at least in India. They determine the sole referral entity, a person with whom the parents spend their maximum time and trust with. They are the ones in whom they confide most of their issues with.

World Cerebral Palsy Day is a wonderful concept to reinforce these simple care giving principles. Parent education and empowerment being central to the cause of care of these children. Like 2017, we are organising activities across the district of Palakkad – in Palakkad town and neaby rural areas and Shoranur town to educate parents and also conduct early detection and intervention camps to identify children who need care.

World Cerebral Palsy Day - at Palakkad and Shoranur, 2018
World Cerebral Palsy Day – at Palakkad and Shoranur, 2018

Activities planned :

  • Free medical camps for underpriviliged children
  • Special clinics with Gait Analysis
  • Funded Orthotic programme for poor children
  • Pediatric Physiotherapy advice
  • Custom made Wheel Chair fitting
  • Parent awareness of Cerebral Palsy – lectures and symposias in rural areas
  • Notices and public handouts to improve general awareness
  • Involvement of other NGOs , social service organisations to improve public outreach

These activities would be done throughout Ocotober 2018 under aegis of the Cerebral Palsy Clinic at Rajiv Gandhi Cooperative Hospital & Research Centre and ICCONS, Shoranur

Contact Numbers for Clinic bookings  and more information:

  1. Rajiv Gandhi Cooperative Hospital, Kallekkad, Palakkad : 0491-250-9000
  2. ICCONS, Shoranur, Palakkad                                                   : 0466-222-4869
  3. Contact me                                                                                  : EMAIL