It was so nice to meet and talk to the parents about #cerebralpalsy and #developmentaldelay in #children at the #puthur #brc in #palakkad yesterday
Stress was on the need for #earlyintervention and adherence to #treatment especially #physiotherapy. The challenges parents face while continuing care is an eyeopener everytime I hear them out.
As in most diseases, treatment challenges in #cerebralpalsy is more to do with #social, #familial and #accessibility issues than actual lack of desire.
Most parents are willing to face the #financial challenges if it means the child will improve. Many are disillusioned with existing treatment methods and fall out because of slow progress, lack of motivation from professionals around and also pure financial pressure. Many have siblings who are healthy and would like to divert their limited resources to that child. This is such an unfortunate choice , but many parents make it.
Such talks and interaction are a wonderful opportunity to break the ice, motivate and also clear their apprehensions on the treatment of cerebral palsy.
A big thanks to Puthur BRC for organising this meeting. More to follow 🙂
Attaching below a few pictures and also a short video which the BRC officials had shared.
This is my #NFT #Art to raise awareness on #Disability caused by #CerebralPalsy .
Importance of detecting it early and early intervention is stressed. Quite often we find that children are not referred early and treated. This results in very bad deformities that are difficult to mend.
This is part of the #ArztForACause effort by doctors to improve disease awareness among public via 🎨#Art #paintings #nftart https://t.co/OzZUu9FJCh
Cerebral Palsy is a tough problem in Paediatric Orthopaedics. The children have spasm, contracture and variety of coordination issues , balancing issues, seizures and other symptoms like tremor, dystonia which makes treatment quite a challenge. This is more so in the younger children where we would like to have a tool that is non invasive and still helps relieve spasm.
Tone Inhibiting casts offer an invaluable tool to control spasm in a very young child that you would want to avoid surgery.
The dosage of surgery in cerebral palsy has to carefully titrated as muscle are inherently weak and over-lengthening can be disastrous.
We try to avoid overzealous initial surgery and but time when possible with plaster casting to reduce muscle spasm.
Tone Inhibiting Casts are a vanishing tool these days in medical professionals’ armamentarium but find it a great tool. In India with cost of Botox injections to relieve being very high and in the class of patients I treat many of who are from poorest strata this is a godsend.
Cast application is done under general anaesthesia so that adequate muscle relaxation is obtained and we take great care for a close , bespoke type fit with good pressure relief over bony prominences. Prevention of pressure sores is very important and technique of cast application – the fit, padding, tightness, joint position, strength of cast all play a role in the final result.
We keep child on physiotherapy all through the time child is on cast to keep up muscle strength and also aid stretching. A cast usually is kept for 6 weeks. Sometimes in severe spasm we have staged application of casts to progressively apply it lesser flexion of joints as the muscle tone decreases.
Before the pandemic struck and wrought drastic stop to treatment of children with cerebral palsy.
Two years have passed and we hobble back to restart our work and pick up pieces. Many children have lost the improvements that they had attained as they lost out of treatment due to lack of money, travel restrictions and physiotherapy.
This is October 2019 we hosted a live painting workshop at ICCONS to raise awareness about Cerebral Palsy.
On #WorldCPDay this year, amid the pandemic, we’ve managed to launch a new rehabilitation facility in association with Karunya MVRC, Palakkad, Kerala, India ( @Karunyamvrc on Twitter )
Kerala State loves Sports, and specially loves Football. We married care for children with Cerebral Palsy and Sports, to setup a one of a kind Adaptive Sports Environment where children would be trained with Physiotherapist’s support by well known Sports Coaches.
Paediatric Orthopaedic Surgeon’s service is also available to assess these children and triage then into various categories from where they can be rehabilitated.
Our Cerebral Palsy Adaptive Sports Team
Ms. Valarmathi- Physiotherapist
Mrs. Valarmathi- Senior Special Educator
Mr. Ravindran – Retd SI and Kerala, Police state and national team Football coach
Ms. Dhanya Ravi- Change Maker, mentor, PwD, National Award winner in the Role Model Category under Empowerment of People with Disability
Mr. Anudarsan – Director , Karunya Medical and Vocational Rehabilitation Center
Adaptive Sports is a special type of Sports training given to children with special needs by adapting the requirements of sports to the specific difficulty the child faces.
This would often involve some change in rules, some Assistive device support, fall prevention and a completely tailored coaching system to enable the child to play effectively.
Why Adaptive Sports ?
Well known rehabilitation method for Cerebral Palsy is Physiotherapy. Often times children find repeated therapy sessions boring, painful at times and many fall out of care. We’ve seen this happen over the years.
Also, there are several limitations to traditional physiotherapy approach when given as a single rehabilitation modality.
Sports training allows much the same benefits of improved strength, coordination and improvement in function that we get out of Physiotherapy but also improves the quality of Physiotherapy session as the child is a willing participant because of the interest in sports.
What are the special challenges in setting up Adaptive Sports in India ?
Coaching for Adaptive Sports is a patient art and the skill is much in dearth. The Sports coach has to tailor his or her expectation to the unique medical issues of the child and training method is customised accordingly.
Often these children have profound muscle weakness, spasticity ( unusual tightness of the muscles ), contracture, ataxia ( issues with body balance ) and inability to selectively more a body part. These result in delayed improvement a ability to perform in Sports activity. These children need care and support of their team to get ahead.
The coach has to be understanding of all these aspects and train the child.
What have we launched in Palakkad ?
Details about our effort to train children in Adaptive Sports here :
As part of #CerebralPalsy Awareness day that just passed us we are organising a two day programme for children with #PediatricOrthopedic Disorders, #CerebralPalsy, #NeurologicalDisorders, #Autism .
The programme is slated to be held for 2 days April5th and 6th.
Timing is between 8 30am and 1pm.
Prior registration is mandatory. This can be done by calling +919495888879.
The first day April 5th Friday for Pediatric Neurological disorders like seizures, autism and second day on April 6th Saturday. The event would be marked by free medical examinations camps, art competitions for children, vocational training for mothers abs awareness programme of respective disorders. It is to be held at #Palakkad #Kerala on these two days.
The event is kindly organised by the selfless efforts of people at #Sevabharathi #Palakkad ably guided by Dr. Sreeram Sankar , Biju Bhasker of #LifeCarePhysiotherapyCentre, Palakkad and assisted by Vinod Kumar of NationalOrthotics, #Coimbatore and several other sponsors. Dr. Velmurugan , Pediatric Neurologist would be part of the event on April 5th and Easwar Tr Pediatric Orthopedic Surgeon will take part on April 6th.